On Wednesday I had a CT scan and got news that blew my socks off, just 6 weeks after my good PET scan, I have a 6 cm tumor low in my abdomen and an other slightly farther up that measures 5.5 cms. It' unclear if the two are connected. I have started back on the Gemzar for the meanwhile and am waiting for Dr. Sabbatini at Memorial Sloan Kettering to get back to me with other treatment options. Dr. Tap at UCLA has suggested a combination of two drugs both pills, one is Temodor and the other is called Sorafenib. From my conversation I had with Dr. Sabbatini in late December I think he will also suggest this protocol. I am trying to stay calm, not always easy to do.
I am looking hard for the "good" news and the silver lining, digging digging...... Okay, so nothing is attached to a major organ, not yet any way, and my lungs are clear, with the exception of a small density at the base of the left lung, not sure what it is. There is a bit of uncertainty about the left rib area. So really the only major issue is the abdomen. I am in a scary place right now, but I keep on reminding myself that I have been in these predicaments before and I have gotten through. Way back when, over two years ago, I did have 40 nodules in my lungs, that was BAD but the Gemzar and Taxatere took care of that. Last year, more tumors and again surgery and Gemzar did it's magic. So, yes the good news is my body responds really well the chemotherapy drugs, and if the old chemo protocol doesn't do it I have other options.
On a happier note, me and few dedicated friends and family members, including Maryclare, my mom, Deanne, and Kalen, are organizing an art show and a silent auction at Vintage Berkeley Wines on College Ave. The auction is on March 27th at 7:00. We have collected many pieces of beautiful art from local artist and we plan on having a great party with terrific wine and yummy hors d'oeuvers. There will be an e-flyer soon with all the all the details.
In this time of stress it's really nice to be working this fundraiser, such a good distraction, toward a cause so important to me and others with Leiomyosarcoma.
That's all for now,
Becca
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wishing you well Becca. I am the mom of a 26 yo daughter who was originally dx w/LMS but now the docs think all along it was GIST, also a sarcoma which is very similar, but different chemos. She has a reoccurance in her espophagus. You have a great spirit and loving people around you...and I am thinking of you in my healing prayers. Patti
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